Since 2019, the Data Saves Lives initiative by the European Patients Forum has been vital for the important discussion about the digital transformation of healthcare and social services in Europe – and the key role of patient voices in all those evolutions. By ensuring data is accurate, secure, and accessible, the initiative helps address public health challenges, particularly in low-resource settings. In this context, ongoing debate about AI is crucial, as it addresses concerns about data privacy, algorithmic bias, and the ethical implications of AI-driven decision-making in healthcare.

So in November 26-27, EPF marked the 5th Anniversary of the Data Saves Lives initiative to further emphasize the critical role of data in improving healthcare outcomes, advocating for the responsible use of personal health information to guide medical decisions and enhance patient care. The event gathered a great mix of patient advocates, data science experts, regulators, ngo representatives, policy makers and more.

NWA participated with having Lars Münter both being in a debate panel on Data Savvy Patients: Empowerment through AI Literacy in Healthcare with Anca Toma, CEO of EPF and Ildiko Vajda of the Dutch Patient Organisation, Eric Sutherland of the OECD and – Stefan Phillips, OneVision Healthcare. And by facilitating a workshop on the importance of education in enhancing trust (in data, health, collaboration etc).

27/12/2024, Brussels – Data Saves Lives 2024 – European Patients’ Forum EPF
© Elio Germani 2024